Thursday, January 31, 2013

We’re Not Alone

Since today is shot day I wanted to do a post dedicated to those who live with JA on a daily basis just like we do. I’ve been amazed at the amount of children who are living with this horrible disease. It’s so sad. Today I’m going to share with you three blogs that I follow. These momma’s are amazing and the kiddos…they are my heroes. Reading these blogs helps me know that we are not alone. I hope you will take a moment to read these ladies’ recent posts. Please also consider leaving them a comment of support…it truly means so much.

Our fight with Systemic Onset Juvenile Idiopathic Arthritis

This blog is all about a sweet girl named Emily. She has the most beautiful smile you’ve ever seen and is such a brave and strong girl. She has a different form of JIA…systemic. This means that it effects her entire system. Emily has to get infusions on top of taking daily medications. I am inspired by Emily’s heart and her bravery. I am also inspired by her amazing Momma.

Parker’s Purple Playa Power – Pounding JA

Parker is an amazing young man. I have been so moved by not only his mom’s posts on the blog but also his own posts. It’s amazing to read his words and to know what it’s like for the child that’s actually living with JA. Parker also has systemic JA as well as other medical concerns. In spite of it all Parker is so brave and strong!

I Stand All Amazed

This is a blog I recently found and the latest post really spoke to my heart. Sarah wrote so honestly about the feelings that she experiences as a mother of a child with JA. Every words she says I can identify with. Thank you, Sarah, for being so open and honest and helping me know that my feelings are perfectly normal.